Patient Satisfaction Survey of Hemophilia Treatment Centers in the United States

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The National Patient Satisfaction Survey (PSS) was a voluntary and anonymous survey taken in 2015 by patients with bleeding disorders such as hemophilia, von Willebrand Disease, or other factor deficiencies who were seen for care at their local Hemophilia Treatment Center (HTC). The HTC Survey was designed to measure the satisfaction of patients at these centers throughout the United States. This site hosts information and results from the first survey and will act as a host for future surveys to continue to study and learn more about how HTCs are doing and what they can do to improve care.

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Fourth National Patient Satisfaction Survey - 2024

Since 2015, the National Patient Satisfaction Survey has been shared with bleeding disorder patients every three years as a way to understand patient satisfaction with their HTC and the care they received. This gives patients the opportunity to share their feedback with their HTC in an anonymous way and allows HTCs to gauge what they are doing right, and what they can do to improve. The fourth survey was implemented in Spring 2024 and is now closed.

Results from this survey will be compiled and analyzed. These results will be shared with participating HTCs and national data will be shared with the public after it is finalized. We thank all who took the time to share their feedback with us!

Learn about the First, Second, and Third National Patient Satisfaction Surveys administered in 2015,2018, and 2021. Who responded? What was the feedback? What did we learn? All articles & a video about our results are listed here.

Over 5000 Respond

What Did We Learn?

Voices of Females with Von Willebrand Disease

Where is Insurance a Barrier to Care

How do HTCs Help Adolescents

Second National Survey Complete

High Satisfaction with 340B Program

Teens Remain Satisfied

CONTACT US (CONTACTENOS)

For HTCs-Technical Assistance Webinar

HTC Survey

Patient Satisfaction Survey of Hemophilia Treatment Centers in the United States