SEcond Patient Satisfaction Survey of

U.S. Hemophilia Treatment Centers

Over 4700 people answered the Second National Patient Satisfaction Survey (PSS) of U.S. Hemophilia Treatment Centers (HTCs) that was conducted spring-summer 2018! Over 95% reported being ‘always’ or ‘usually’ satisfied with HTC care. 

The first PSS was conducted in 2015. In 2018, patients and caregivers from over 125 HTCs throughout the country joined. Data are being analyzed. Results were given to each participating HTC to guide service improvements. Articles showing national level results comparing the two time periods will be posted under this website’s news section in the months ahead.

Results from the 2018 survey were presented in October 2018 at the National Hemophilia Foundation’s 70th Annual Bleeding Disorders Conference and the American Thrombosis and Hemostasis Data Summit and can be viewed here. Friends of the National Center on Birth Defects and Developmental Disabilities and the Hemophilia Alliance reported on the PSS in their November and December 2018 newsletters.

We thank everyone who shared their voice and experience with their HTC. If you have questions, please contact us at HTCSurvey@ucdenver.edu. 

Click the graphic above to learn about the Second National Patient Satisfaction Survey.

Click the graphic above to learn about the Second National Patient Satisfaction Survey.


Learn about the First National Patient Satisfaction Survey administered in 2015. Who responded? What was the feedback? What did we learn? All articles & a video about our results are listed here.