Patient Satisfaction Survey of

Hemophilia Treatment Centers

The Second National Patient Satisfaction Survey of Hemophilia Treatment Centers (HTCs) is now closed. We thank all who took time to participate and share their voice and experience with their HTC. 

This survey was the second in a series of national surveys conducted in 2015 and 2018. About 5000 patients from over 125 Hemophilia Treatment Centers throughout the United States participated. Data from the latest survey are being analyzed. HTC level results are being shared with each participating HTC to guide service improvements. National level results comparing the two time periods will be shared at this website in coming articles that will be posted under our news section. Over 95% of patients in 2018 reported being ‘always’ or ‘usually’ satisfied with HTC care.

The first national results from the 2018 survey were presented in October at the National Hemophilia Foundation’s 70th Annual Bleeding Disorders Conference in Orlando and the American Thrombosis and Hemostasis Data Summit and can be viewed here.

If you have questions, please contact us at 

Learn about the First National Patient Satisfaction Survey administered in 2015. Who responded? What was the feedback? What did we learn? All articles & a video about our results are listed here.