Patient Satisfaction Survey Steering Committee Members
Susan lattimore, RN, GCPH
Susan Lattimore is the Associate Director at the Hemostasis and Thrombosis Center at Oregon Health & Science University. She serves as the Regional Director for the Mountain States Hemophilia Network. Her primary interest is in public health and research initiatives for people with bleeding and clotting disorders.
Rick Shearer
Rick Shearer holds a Bachelor of Science degree in Computer Information Systems and has served the last 18 years as Senior Systems Analyst and Data Manager at the University of Colorado Hemophilia & Thrombosis Center. Mr. Shearer has developed several database applications focused on hemophilia and thrombosis research and serves as the ATHN system administrator for the center. Prior work involved relational database design and computer application development for the telecommunications and building design industries.
MERILEE ASHTON
Merilee Ashton has been the Communications Coordinator at the University of Colorado Hemophilia and Thrombosis Center since 2013 and manages their website, newsletter, social media, and manages many internal publications. She provides editorial support and insight for doctors, psychologists, social workers, nurses, and others in her role as a communications expert. She joined the Patient Satisfaction Survey Steering Committee just as the first survey was finishing completion in 2015. She manages the www.htcsurvey.com website, writes and edits articles to share results from the surveys with local and nationwide audiences, and creates marketing content to encourage participation in the survey. Her skills in writing and graphic arts provide support in visualizing the data into posters to share at national conferences.
Merilee has a Bachelor of Arts in Broadcasting from the Walter Cronkite School of Journalism and Mass Communications at Arizona State University.
Virginie Sirianna, MHA, BS, CPHT
Virginie Sirianna joined the University of North Carolina Hemophilia and Thrombosis Center in May of 2015 as a Data Coordinator, contributing to the CDC Community Counts Bleeding Disorders Surveillance project and numerous research projects. In August 2019, Virginie’s role expanded to the Southeast Region Hemophilia Network’s Region IV North Administrator position. In that role, she provides leadership, direction, oversight, and technical assistance to all the HTCs in Region IV North, focusing on the CDC Community Counts project. Virginie received her Bachelor of Science in Chemistry from North Carolina State University in 2003, her Pharmacy Technician Certification (CPhT) in April 2013, and a Master’s in Health Administration in May 2022.
Kaveh Shabtaie, MPH
Kaveh Shabtaie, MPH, is a skilled population health manager whose areas of expertise include grant management, database management, research study coordination, program funding, financial management and analysis. He has more than 13 years of experience in health care settings, most recently overseeing grant submissions and compliance of behavioral science research at Memorial Sloan Kettering Cancer Center in New York, NY. Kaveh received his Bachelor of Arts in Biology, Society and the Environment at the University of Minnesota and completed a Master of Public Health in Health Management and Policy at Drexel University.
His research background includes project management of safety protocol for an inpatient hospital conversion. For this project, Kaveh conducted program evaluation culminating in an innovative staff regulatory safety training platform. He has also directed needs assessment for emergency responders and led projects in health economics and outcomes pharmaceutical research.
Since accepting the role of Regional Coordinator of Region V-West/Northern States at the Great Lakes Hemophilia Foundation in 2018, Kaveh has created a new internal mechanism that tracks Hemophilia Treatment Center progress in HRSA and CDC grant measures. He organized and executed the first fully virtual Regional Meeting in 2019. Kaveh is active on a national level leading national federal partner calls presenting a session on the Social Determinants of Health at the National Hemophilia Foundation’s Bleeding Disorder Conference in 2019 and presenting a regional perspective at 2020 ATHN Data Summit. He is happy to join the National HTC Patient Satisfaction Survey Steering Committee.
Kaitlin Barnett, MSW, LCSW
Ms. Barnett serves as the New England Region Administrator as of September 2022. Prior to assuming this role, Kaitlin was a Clinical Social Worker at Mount Sinai Hospital for 10 years. During her 6 years as the Hemophilia social worker at the Mount Sinai Hemophilia Treatment Center, Kaitlin gained extensive experience and knowledge of bleeding disorder populations. She was also involved with leading regional initiatives as well as quality improvement projects. Kaitlin uses her clinical skills as well as her program development background to help develop and enhance the region and support the HTC’s within the New England Region Network. Kaitlin maintains her clinical license and oversees the social work position at the Mount Sinai Hospital Hemophilia Treatment Center. Kaitlin was awarded a Master of Science in Social Work degree from Columbia University and a Bachelor of Science from the University of Wisconsin.
Eleanor Carrick, MS
Eleanor Carrick joined the Hemostasis and Thrombosis Center at Oregon Health & Science University in 2014. She has led the HTC Pharmacy Factor Program, facilitated quality improvement efforts, and now serves as Regional Administrator for the Mountain States Hemostasis Network.
Nicole Crook, RN
Nicole Crook is the Director of Research at the Center for Comprehensive Care and Diagnosis of Inherited Blood Disorders (CIBD). She serves as the Regional Administrator for the Western States Region Hemophilia Network. Nicole has contributed to numerous research publications. She joined the HUGS steering committee in 2020 and took an advisory board position at the University of California, Santa Barbara, for their Women in Leadership Executive Program at the end of 2021. She joined the Patient Satisfaction Survey Steering Committee in 2022.
Kelsey Smith, MA
Kelsey Smith is the Clinical Research Manager for the Hemostasis and Thrombosis Center at Oregon Health and Science University. She first joined the HTC at OHSU in 2018 as a Clinical Research Associate and took on the role as Research Manager in 2021. In this role she manages and coordinates investigator initiated and collaborative research projects, as well as industry sponsored clinical trials.
Emeritus Members of the Patient Satisfaction Survey Steering Committee
Judith Baker, DRPH, mHSA
Dr. Baker is a founding member of the U.S. Hemophilia Treatment Center Patient Satisfaction Survey Steering Committee and serves supporting academic papers and providing expertise and insight to findings. She is now retired, but her experience as a national leader in rare blood disorder healthcare, policies, and team-based clinical care gave her particularly strong insights on how to implement a national survey of this kind. Her research examined organizational influences on quality, cost, outcomes, and equity. As Regional Public Health Director for the Center for Inherited Blood Disorders in Orange, CA, Dr. Baker worked with federal CDC and HRSA grants to help support the Western States/Region IX Hemophilia Network’s 13 specialty centers serving California, Hawaii, Nevada and the US Pacific Islands. Dr. Baker was also Public Health/Policy Director for HRSA’s 13 State Pacific Sickle Cell Regional Collaborative. She led the development of the first Hemophilia Treatment Centers in Hawaii, Nevada and Guam. Dr. Baker co-created the award-winning adult Sickle Cell Clinic at MLK Jr. Outpatient Center in Los Angeles. Dr. Baker also advised state and federal agencies, including serving on the FDA’s Blood Product Advisory Committee. She received a National Hemophilia Foundation Meritorious Service Award. She obtained her Doctor of Public Health from the UCLA, and Master in Health Services Administration from the University of Michigan.
Brenda Riske, MSN, MBA, MPA
Brenda Riske is a founding member of the U.S. Hemophilia Treatment Center Patient Satisfaction Survey Steering Committee and serves supporting academic papers and providing expertise and insight to findings. Retired now, Brenda continues to be involved through this and other committees and boards nationwide. Throughout her healthcare career, Brenda’s academic interests were in investigating models of healthcare systems. She has worked to develop national databases to improve patient care. She served as the Regional Coordinator for the Mountain States Region of the Health Resources Services Administration (HRSAA) and Centers for Disease Control and Prevention (CDC), and during that time, helped to initiate and implement the first national Patient Satisfaction Survey. She previously has served on the Steering Committee for the Hemophilia Utilization Group Studies (HUGS), served as chair of the Hemophilia Alliance Foundation, and on the board of the American Thrombosis and Hemostasis Network (ATHN).